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강경아 ( Kang Kyung-Ah ) - 삼육대학교 간호학과
김신정 ( Kim Shin-Jeong ) - 한림대학교 간호학부
김영순 ( Kim Young-Soon ) - 세브란스병원 호스피스실
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Abstract
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Purpose: The purpose of this study was to analyze the need for child hospice care programs in families of children with cancer.
Method: The survey was of 104 families who were taking care of children with cancer. This survey was conducted from February 2004 to July 2004 at two general hospitals in Seoul. The data were collected through a self-reporting questionnaire of 22 items. The items were classified into five areas by factor analysis to identify the construct validity. The reliability of the tool was established by Cronbach’s alpha as .94 and the data collected were analyzed by descriptive statistics, t-test and ANOVA.
Result: 1) The degree of need for hospice care of the subjects showed a high average of 3.40(±3.8). The need for ’emotional care of children’ showed the highest mean(M=3.55), ’management of terminal physical symptoms’ (M=3.49), ’control of secondary physical problems’ (M=3.41), ’acceptance of the family’s difficulty’ (M=3.20), ’spiritual care for preparing for death’ (M=3.17), respectively. 2) With respect to the demographic characteristics of the subjects, there were statistically significant differences in hospice care needs, according to the child’s mother’s age(F==4.980, p=.009), whether or not there were cancer patients among their siblings or relatives(t=2.423, p=.017).
Conclusion : The family of children with cancer have a heavy burden of ambivalence, especially in relieving the anxiety and fear of their children, communicating about death, and managing physical symptoms. Child hospice care must be provided considering the needs of families of children with cancer. In this sense, this country’s needs as well as hospice nurses’ higher concern and support for hospice care of children require further education and program development to meet the current demands.
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KeyWords
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원문 및 링크아웃 정보
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등재저널 정보
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